Port Removal Surgery

April 10th Update:

Today Isaac had his port removed after having it for almost 2 whole years!  We did the surgery at Blanks Children's in Des Moines.  This made it way more convenient, although we missed some of the perks of being at Iowa. 

Isaac first got his port accessed by his favorite nurse, Morgan.  Although it seems kind of strange to access his port when the goal of surgery was to remove it, it just made it more "normal" for him.  Then after he fell asleep they would de-access him and start another IV for the actual surgery.  Well apparently everyone does things a bit different.  We are use to being at Iowa where Isaac would fall asleep nice and slow over a few minutes, he would talk to us, become a bit loopy and then eventually just fall asleep.  This time however, they gave him the medicine and he just went limp in about 2 seconds.  His tongue rolled in the back of his mouth and they had to hold his head just right in order to keep him breathing. Nick and I were definitely not expecting this and it gave us quite a scare.   

The procedure took about 45 minutes and everything went well.  Isaac has to take it easy for a few days which has been challenging but overall we are thrilled for him. 

2 Years Ago

April 7th Update:

2 years ago was a devastating day for our family as we were told that our baby boy had a brain tumor.  This was one of the worst days ever... Now, flash forward 2 years and many miracles later and this family has so much to be thankful for...

For starters Isaac's tumor is "stable" and just this week we found out that Isaac gets to have his port removed (or as we call it his "Iron Man Blast" :-)).  His surgery is scheduled for this coming Monday, the 10th.  Yay!  I can't begin to explain how much we've been wanting this day to come.  His port was great for getting chemo treatments and made these appointments more manageable but its the constant worrying about him getting sick and the port infected, and the middle of the night rush to the ER trips that have been "challenging" we'll say.  I am so thankful that Isaac gets to close this chapter of his life and live like a normal little boy.  Of course, I know his life will never be "normal" with constant follow up appointments but we'll take it.  :-)

Isaac has come so far since that awful day in 2015.  He continues to amaze Nick and I each and every day.

MRI Results

Isaac's most recent MRI results showed a "STABLE" tumor!!  Hip Hip Hurray!